Cystinosis Ireland

Cystinosis Ireland was founded in 2003 as an Irish registered charity. Cystinosis is an extremely rare metabolic disease characterized by an accumulation of the amino acid cystine in organs and tissues, leading to severe organ dysfunction. It has devastating effects on those born with it, as soft tissue and all organs in the body are directly affected by this crystallization, including the kidneys, eyes, liver, muscles, and central nervous system. There is currently no cure for cystinosis, but there is hope. We are a volunteer-led, non-profit organisation dedicated to raising money to fund research for cystinosis in Ireland and globally, working alongside other international cystinosis charities in hopes of finding a cure. We also reach out to families of newly diagnosed children, as well as offer ongoing support, assistance, and advocacy for those patients living with cystinosis in Ireland. Since 2003, we have contributed almost €1.9 million to cystinosis research. We won't stop until we find a cure for this devastating disease.

onside youth zones

payroll giving in action

ibid events

fundsurfer